Tagged with family

My Daughter is Playing #Ftball

Gretchen. My little Gretchen. My little fighter. Theo’s biggest advocate. It’s been a tough winter on her brother and, as a result, Miss Gretchen is feeling the pinch. At least that’s what I think is going on. That, plus, Miss Olena acted this same way last year. Now, it’s Gretchen’s turn, to TAKE IT ALL … Continue reading

Side of Patience, Please

Gretchen has pushed back. If you have been following my Facebook page you’ve seen that I have given right back to her. She yells, whines, and cries and then carries on even when you tell her to stop. Time outs aren’t working (but she’s getting better — even put herself in time out last week … Continue reading

Been Stung, and Survived

Yesterday, while the kiddos and I were out playing in the backyard, I made the careless mistake of putting my flip-flops on, instead of my sneakers. I had a long morning run (10 miles) and it was just gorgeous and sunny and Theo really, REALLY, wanted to get outside. So to appease the Boss I just … Continue reading

More Than a Race

Back in December, when I purchased my winter running gear at Fleet Feet Syracuse, the staff member talked about how he biked and that the gear I selected often kept him warm on the coldest of days. During the conversation I mentioned I ran, but my husband rode, he interrupted me to tell me about … Continue reading

To The Nurse Who Made Me Cry

It was nurses week recently and I am forever grateful to the many we have met along the way. One thing about being a NICU mom, then a NICU alumni, you know that the doctors are good for updates, but those nurses are in the trenches with you and they are the ones who will … Continue reading

Weekend Successes

“You Never Know Until you Try.” In our autism household, that’s our motto. And that’s usually followed by a plan b, extra provisions, exit strategies, deep breathing, lots of reassurance, wearing bright colors, pre-dialing others who may assist, LOTS of deep breathing… I kid. Only slightly. We have discovered that Theodore generally likes to venture … Continue reading

Blessings are Everywhere

Sometimes you don’t know it, especially when you’re having a hard time, but someone is always watching out for you… After a particularly rough few days last week, Saturday morning saw Theo away at group respite, and the morning free for me and the girls. It was beautiful and I wanted to walk to Dunn’s Bakery … Continue reading

Then, there was this video

Theo’s been having a rough few days. He managed to shake the strep he got…but its in between weather seasons here in CNY and although today and yesterday were perfect spring days…some times it looks lovely out, but it’s not. Or it’s windy. Or it’s rainy. Or the wind is going one way only. Or, … Continue reading

#Bullying We Need Understanding

My dad was my superhero for a variety of reasons. Among them, and one of my greatest memories of him, was when he stood up for a developmentally disabled girl in front of a dairy in Utica. The girl was being bullied by three, maybe four, other teenagers or kids…I was about 5 when I … Continue reading

To My Mom, Happy Birthday

Happy birthday dear mommy. Eighty-five years and you really have seen it all. You raised three children almost back to back, then welcomed another, and then when they told you your life was “changing” you welcomed me. I was the preemie then. (Boy, 4 pounds 13 ounces seems huge compared to my three, but I digress.) … Continue reading