Cocktails on the Spectrum, Vol. 2, episode 4

Recorded and posted last night, I catch you up on the latest from our house… Enjoy!

Three Years

Today, three years ago, we began a journey of healing. Along with it came intense frustration at the lack of services in Central New York for those on the severe end of the autism spectrum. At a time of severe crisis we found there wasn’t an inpatient treatment program to adjust the mental health needs … Continue reading →

The two-step shuffle that keeps coming to mind

As a family that’s graduated from the NICU we’re very aware of the saying: “One step forward, two steps back.” Leaderonomics discusses the origin here Little did I think that this would be the ongoing phrase in our house. No matter what we do, when we move forward — swoop — along comes something to … Continue reading →

Bike rides and foot rubs

Because, it’s Sunday. And I can no longer avoid his feet when he stretches out.

New wheels. New freedom.

Look out world — Theodore is on the move. This spring we had looked into getting Theodore an adaptive bike. The model we were looking at was a custom tandem bike featuring a driver in the back, and Theo in the front. The price range for this sweet ride was in the thousands. Not to … Continue reading →

Every Summer has a Story

Make it a good one!

Rebuilding: part two

Rome wasn’t built in a day. So the same goes for workspace for Theodore. During the spring that was quarantine, we had talked about converting part of our basement1 into a work area for The Boss so he had some dedicated space. Well, of course, he (and his medications) had other plans. On the plus … Continue reading →

We Did It

Or, should I say, he did it. That would be Theo. Surviving the day.   You see my boy, The Boss, did not have school today. Which means a change in schedule. Such a drag. But it also brought with it changing weather and a high wind advisory. For Theo, our weather prognosticator, it was, … Continue reading →

“Is There Anything You Don’t Do?”

He was joking. He was. But I wasn’t in the mood.   I haven’t been in the mood for a while. You see, my poor Theo, who had suffered from a ridiculous five-week stomach ailment, then a week-long bout of tonsillitis, had been an enormous handful since Thanksgiving. Yes, that is correct. He’s been sick … Continue reading →

Autism Blogging: Am I Doing OK?

Recently a very popular autism blog writer — Autism Daddy — revealed his true identity. It broke the interwebs! AD was one of the first blogs I read that seemed to paint a similar picture to what we have with our Theodore. But in the ongoing coverage in his coming out there was backlash in … Continue reading →